My mum said that I should do this soo... tada!!
Okay, hi, I have had CFS(chronic fatigue syndrome) for about a year and a half. Before I got CFS I was always getting sick anyway, I would have about two weeks of school. The longest time was about 3 weeks.
I remember the first day I got sick right before an oral, I was really looking forward to it, I spent hours writing a poem for it.
It started just like the other times when I got sick, I started to cough and I generally had a head cold, I thought that I would get better in about a week or so, but as soon as I did I caught another cold. This went on for a while, then I started to throw up at night, after 4 weeks and a couple trips to the local GP, my mum took me to the hospital, I thought that there was something really wrong and that I was going to die. We got to the hospital and had to wait for hours, mum was ready to just go home when a doctor called us in. Mum explained that I had been sick for 4 weeks and was concerned that I had whooping cough or something. The doctor asked a lot of questions, then got her supervisor in. She came in and asked the same questions. By this time it was about 1 in the morning, I was tired, and had the worst headache. The supervisor asked my mum to leave then asked me if I could possibly be pregnant. I told her no, I really wanted to scream at her, but I suppose that it was better that she asked than me being pregnant and her not asking. She called my mum back in and then told me in a very subtle way that I was crazy and there was nothing wrong with me. I was annoyed. Thankfully mum didn't believe her. We left as soon as we could.
So over the next 3 weeks I was still sick. My mum started to do some research, she had a few theories about what was wrong with me. One of which was chronic fatigue, little did she know that she was right.
My dad took me to the hospital(not the same one as last time), I don't really remember why, I think that it was because my parents where worried that I still wasn't better. I had to wait ages again, then they took me in and this really nice doctor called Steve questioned me, turns out that he had CFS a couple years back. He took a lot of blood from me to run tests and recommended a doctor. He sent the results to that doctor.
About a week later I got a really high fever, was very stuffed up, couldn't move, really sore throat and had a major loss of apatite(I wouldn't eat anything). I was like that for three days, my parents where really worried - especially since I hadn't eaten anything - so they took me to the hospital(not the same one as last time), I didn't have to wait long, as soon as we got there, I was put under observation, with fluids, and medication. I got to see Steve again, he was not impressed. Hehehe. After a while my temperature dropped a little. It was 2 in the morning and the doctors hadn't said anything. Mum was tired and sick of waiting so asked if we could go home. They said that if anything happened I had to come back.
I got better after a while, well as good as I was going to get. I was still blah. Three weeks later, I got excruciating pain in my stomach. It was so bad, I was screaming, this time I definitely thought that I was going to die. My mum panicked and took me to the local GP, they said to go get a Ultra-sound, we went to some x-ray place, I was in the back of the car crying. Mum went inside and got them to bring out a stretcher(what a cool x-ray place, they have stretchers), they took me inside, the receptionist freaked out, I would have laughed if I didn't hurt so much. They bumped me up to the first to go in, all the other people were very understanding. I was having my ultra-sound, when half way through the pain lessened, it was tolerable now, but still hurt. They found nothing in the ultra-sound. It is still a mystery today as to what was wrong.
Anyway, I went to see this doctor that was recommended to us. He had me have an MRI to see if I had sinusitis(basically when yours head is filled with mucus and puss and other yucky stuff), I did(and still do), he put me on medication for it. Then he did some tests and diagnosed me with chronic gastritis(where your stomach lining is not there, so it really hurts to digest food and if you touch your stomach), he put me on medication for that as well. He told me that I needed to increase my serotonin to stop my brain fog. He put me on Prozac. Then what I was least expecting, he said that I had anorexia, I started to freak out, but he explained that it wasn't anorexia nervosa, it just meant that I had loss of apatite not that I had a mental condition(I have always hated calling it a 'mental condition', just doesn't sound right, sounds like your calling them crazy). Of course I yelled at him that he could of just said 'loss of apatite' not 'anorexia' and make me freak out. He also told me that I just needed to exercise.
We went and saw him every so often for check ups, after a while he decided that I needed a, a, I can't remember the word, but it's when they knock you out and stick a camera down your throat. Well he did that to see if there was some underlying cause for my chronic gastritis. So I went into hospital a couple days later, they did the thing, and guess what, they found nothing.
So, after about 4 weeks or something we stopped seeing him cause mum said 'your not getting better fast enough' But of course listened to him about me exercising. So every weekend I went to a personal trainer that is one of my dads friends. His name is Adam, he is an exercise nut, and had appendicitis, ignored it, his appendix burst, had to go into surgery, then as soon as he woke up wanted to leave, go to the gym and exercise. I don't like him. I struggled a lot in every session, passed out a couple times, and as soon as i was in the car going home I would pass out and not wake up for the rest of the day. You would think that my parents would stop me from going, NOOOO, I had to go every weekend regardless. Child abuse I recon.
Anyway, mum found a doctor/naturalist, I went to see him, he is old and always rushed session, he has this wall filled with flyers and pamphlets, whenever he is talking about something he will roll his chair over to the wall and grab a related pamphlet and give it to me, I have a whole bunch of them. So, he took some blood tests. He is the first doctor that I have been to that found something wrong with my blood and didn't think I was crazy, I liked him. He said I had CFS and gave me all these vitamin and supplement tablets. I had to go see him every week, sometimes twice, to get needles.
Since I haven't been to school in ages I had to repeat grade 8. At the start of the year mum started me on homeschooling through BSDE, I don't have to do tests or as much work as most, cause I can't A) stay awake long enough and B) think clearly. I probably have to repeat again.
A couple weeks ago, I woke up at 4:30 in the morning, feeling really nauseous, I started to throw up, I didn't want to wake my mum up, cause she was up really late the night before. I tried to go to sleep again but every time I got close, I threw up, it was gross. Mum finally woke up at about 7:30, I told her what happened, she told me that I should have woken her up. She called an ambulance, cause it got really bad and I couldn't move. They got there about 45 minutes later(took their sweet time!) I was having trouble breathing so they gave me an oxygen mask, we got to the hospital, they gave me a magic wafer!!(it's this new drug that you don't need to swallow, just stick it under your tongue and it melts) they stop nausea. I have a really high fever again and was classified a contagious threat. They took me to my own little room where they could watch me, away from other patients, and gave me fluids. There was a really nice nurse who stayed with me, she had the same sense of humor as me so we made jokes and stuff. Finally they moved me to a room with this little boy, he was five and had internal bleeding. He was screaming all night, his parents kept lying to him saying that he was fine and that 'we are going to the suit' when they knocked him out and took him in for surgery.
Anyway, we are kind of up to date now, I stopped seeing Adam and my weekly needles a while ago because I got worse and couldn't leave the house. I have probably missed stuff in between the major events, I apologize, I wrote all that I could think of, and I have major brain fog at the moment, so I apologize about spelling as well. Now, please excuse me, I am going to go collapse into bed.